No coNtrol

Apologies dear readers for not writing for a while. I’ve been busy with ordering Christmas presents and being ill😂. I didn’t want this long awaited blog to be depressive but I have a feeling that’s how it’s going to be so watch out! Until Monday 3rd December, I hadn’t been out of the house since […]

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It’s official – I’m Severe

I’ve just finished reading the book “One Last Goodbye, by Kay Gilderdale”. It’s written by the mother of Lyn Gilderdale who suffered very severe ME since the age of 14 and died aged 31 with her mothers assistance. It is a very emotive book and well worth a read. It certainly brought tears to my […]

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Watching from the Inside

By Fiona Wood I have no sense of time anymore. No sense of the temperature outside. Peoples lives running fast, no pacing required. Through Facebook I get a sense of what is happening in the lives of my friends and family. They sometimes send words of “hope you get well.” Those are hard to read…

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Walking down MEmory lane.

Yesterday, I had a lovely visit from a university student who is in her last year studying media. She wants her thesis to be on CFS/ME as she herself suffered as a teenager for a few years whilst still at school. She wanted to know my story. So, I told her every detail from the […]

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Fading away Part 2

It’s stone dead. This parrot is no more! It’s ceased to be! It’s run down the curtain and joined the choir invisible! This is a late parrot! It’s a stiff! Bereft of life, it rests in peace! If you hadn’t nailed it to the perch, it would be pushing up the daisies! It’s curled up […]

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Fading Away Part 1.

  “I feel like I’m fading away” were the words that I spoke to the on call Doctor 22nd September 2018.  The doctor was so nice as she held my hand. One of the nicest I had ever met. The other doctor had taken my husband and daughter down stairs  so they could each speak […]

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We’re so busy!

The nurses are so busy today. If we let you on the end of the list we’ll have to do it for everyone! – Receptionist We’re sooo busy today! You can lie here and we’ll get to you when we can, but we’re so busy. We’ve had 5 emergencies and now you. We’re so busy. […]

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