Innocent

So, it’s been an extremely long time since I’ve written a post. I think it’s taken such a challenging time to put my finger to a keyboard once again. Ironically, I have since co authored a book called Don’t Quit, A masterpiece in the making. It’s an extremely small book of seven stories of Hope. […]

Do you want fries with that brain?

So, I’m not quite sure how this blog is going to go as I sense it will be a selection of random thoughts that have been going around in my head for days but none of them capable of making one whole post! So! I said , to myself, Daisy and Trevor (dogs – I’ll […]

Fading away Part 2

It’s stone dead. This parrot is no more! It’s ceased to be! It’s run down the curtain and joined the choir invisible! This is a late parrot! It’s a stiff! Bereft of life, it rests in peace! If you hadn’t nailed it to the perch, it would be pushing up the daisies! It’s curled up […]

Fading Away Part 1.

“I feel like I’m fading away” were the words that I spoke to the on call Doctor 22nd September 2018. The doctor was so nice as she held my hand. One of the nicest I had ever met. The other doctor had taken my husband and daughter down stairs so they could each speak […]

‘Insight’ on chronic fatigue syndrome: Andrew’s experience

via ‘Insight’ on chronic fatigue syndrome: Andrew’s experience This is a blog worth reading! Andrew has just been on an Australian talk show about CFS/ME. Andrew kindly sent me the link to the programme which was ‘hard’ to watch. It was hard to see the reflection of my own illness in others. I have only […]

M.E. Disabled?

For the first time today, I really explored the thought am I disabled? I have ME, so am I actually disabled? The Equality Act says that you’re disabled if you have “a physical or mental impairment that has a ‘substantial’ and ‘long-term’ negative effect on your ability to do normal daily activities”. That description does […]

CFS/ME & Fibromyalgia Awareness day

Here in the UK, it was CFS/ME and Fibromyalgia awareness day on Friday 12th May. I really wanted to write something on my Facebook wall but frankly I didn’t know what to say, and most ironically I was actually too ill that day to even pick up my iPad! In the early hours of Saturday […]

F.E.A.R

Warning: this post does discuss fear within chronic illness but from a Christian perspective. No bible bashing intended just a few personal thoughts and enquiries really from a non church going Christian. So, no offence intended whatever side of the fence you’re on. Or, indeed, you maybe on the fence and that’s okay too:) So, […]

Isolation V solitude

As time goes on with this illness I think we all start to feel a bit isolated and even lonely. People try their very best to understand but sadly often offer blasé comments such as, ‘you need to be more positive’, or ‘have you tried exercising more!’. My Christian friends declare that God will heal […]

Thinking is really doing my head in!

Before I begin, I just want you to know that this isn’t a deep emotional post! The title of this post is just explaining my problem! Over the past few days I’ve noticed that I seem to have a bit more energy. I am, with fingers crossed, hoping that this means I am finally crawling […]